Community-led monitoring

Community-led monitoring is an approach to data based on the principle of “nothing about us without us”. This provides an opportunity to assess the quality of services and barriers to accessing them, to analyze the current situation, and to forecast its development.Data impacts which problems are visible and to which needs resources are allocated. Community-led research focuses first on the most pressing issues that require immediate change.

What is CLM

When data collection is led by people from communities, it allows for an assessment of the situation not from the outside, but from within, focusing on what is important to the communities themselves.For many years, community representatives were involved in data collection exclusively in the field, while “expert organizations” had the authority to determine the focus of data collection, terminology, and data collection tools.

Communities are now seeking to conduct their own monitoring. This provides them with leadership both in monitoring and in advocacy, as well as the ability to change the situation.There is no point in monitoring simply for the sake of monitoring. Data is only relevant when it is used to advocate for change, and this represents a huge opportunity that ECOM is helping its national partners take advantage of.

What does ECOM do in the field of CLM

Human rights

Through community efforts, ECOM documents cases of human rights violations in the EECA region. Collecting cases helps assess barriers in individual countries and the region as a whole, while the data obtained is used for advocacy. In addition, ECOM supports strategic litigation based on the documented cases.

ECOM uses data from CLM in international advocacy: we submit alternative reports to treaty bodies as part of Universal Periodic Review (UPR) and provide data to UN Special Rapporteurs, and the OSCE.

The development of ECOM focuses on strengthening the LGBT+ community in the EECA region. It unites activists and organizations, promotes health and human rights.

Advocacy for access to HIV services 

A Tool for Analyzing the Cascade of HIV Services Among MSM and Trans People

A tool for analyzing the cascade of HIV services among MSM was developed by ECOM back in 2017. Since then, it has been used regularly in countries of the EECA region. Analyzing the cascade and showing areas of insufficient coverage identifies gaps in services. ECOM developed a cascade analysis tool both for MSM, as well as for trans people. This study covers not only an analysis of the cascade of continuous care (95-95-95), but also the cascade of prevention services, the cascade of needs and access to pre-exposure prophylaxis (PrEP), and even the cascade of the meaningful involvement of MSM and trans people in the HIV response

MSMIT and SWIT: Tools for Analyzing the Implementation of HIV Programs

The MSMIT and SWIT are tools for analyzing the implementation of HIV programs in countries. These tools are the next step in the analysis of HIV service cascades, as they help to understand what services are missing. In fact, each number of the cascade consists of a set of services, and if these services are implemented effectively and with high quality, then the cascade will be complete. Our analysis tools help identify which services need to be promoted and implemented to fill gaps in national cascades

Tool for Calculating the Cost of Services for MSM

Tool for calculating the cost of services for MSM. This is a unique financial forecasting tool (costing of services), which allows community leaders and activists to independently calculate the amount of funding necessary for the next 3 years to cover the planned number of clients. The tool includes a forecast for both the cost of services and consumables, as well as for the cost of maintaining offices and the cost of additional services such as shelters.

Assessing the level of homophobia and transphobia among medical personnel (the “secret client” method)

A quality service is a service that is provided without stigma or discrimination. Thanks to the “secret client” methodology, our national partners can, without bias, assess the level of services provided both in NGOs, and in state health care institutions. The specificity of this tool is that the interest of government bodies is also required for its high-quality implementation, which provides an additional opportunity for cooperation and for establishing relationships between NGOs and medical institutions.

“Secret client” methodology

A tool for monitoring PrEP services was developed for NGOs in the EECA region

With this tool, community leaders and public organizations will be able to assess the effectiveness and quality of PrEP services in the country, including their compliance with international standards and WHO and UNAIDS guidelines. They will also be able to determine the needs and problems of recipients of PrEP services, and identify barriers to accessing these services. The results of this study will help national partners advocate for changes in regulations, as well as in the quality of service provision.

CLM news

October 6, 2023

ECOM at Fast-Track Cities 2023: global partnership in action

The fourth annual Fast-Track Cities 2023 conference was held in Amsterdam on September 25-27, organized by the International Association of...
September 29, 2023

Combating HIV Epidemic: Vitaly Djuma Shared ECOM's Experience with WHO and ECDC

ECOM’s Executive Director Vitaly Djuma took part in a series of meetings between WHO and the European Center for Disease...
September 8, 2023

ECOM Joins Youth4Health Network

Today we are pleased to announce an important milestone regarding youth participation in health and human rights. ECOM has officially...
August 18, 2023

Kyrgyzstan prohibits “LGBT propaganda” among children

The President of Kyrgyzstan signed amendments to the Law “on measures to prevent harm to the health of children, and...
July 28, 2023

Three Countries in Central Asia Report on Progress Towards Achieving Sustainable Development Goals

From July 10 to 19, the High-level Political Forum was held in New York, where Tajikistan, Turkmenistan and Uzbekistan spoke...
July 27, 2023

Transphobic Law Adopted in Russia

On July 14, 2023, the law prohibiting transgender transition was adopted unanimously by all the deputies in the third and...
July 10, 2023

LGBTQI+ situation in Azerbaijan — Will we lose the chains?

“Chains have a symbolic meaning: the government put chains on our neck” — Avaz Hafizli who chained himself the fences...
June 30, 2023

ECOM held a training on community-led monitoring for Coalition members

On June 13-15, fourteen staff members from non-governmental organizations and initiative groups working in the field of HIV prevention among...
June 29, 2023

Report on Violations of LGBT People's Rights in Armenia in 2022

ECOM annually conducts an analysis of violations of LGBT people’s rights in the countries of Eastern Europe and Central Asia....
June 28, 2023

ECOM experts presented successful cases of community-led monitoring of services

On June 20, a webinar on the principles of and approaches to community-led monitoring of services (CLM) was held. The...
June 19, 2023

ECOM and Partners Protest Against Exclusion of Civil Society from CCM in Kyrgyzstan

ECOM and seven other regional organizations joined their efforts and signed a letter addressed to the Global Fund in connection...
June 19, 2023

ECOM delegation participated in the Forum on Sustainable Healthcare Development

On June 8 and 9, the Forum on Sustainable Healthcare Development was held in Warsaw. Vitaly Djuma, ECOM’s Executive Director,...
June 8, 2023

Report on Violations of LGBT People's Rights in Uzbekistan in 2022

ECOM continues to regularly analyze violations of LGBT people’s rights in the countries of the Eastern Europe and Central Asia...
June 6, 2023

Vitaly Djuma takes part in 49th Global Fund Board Meeting

Vitaly Djuma, Executive Director of ECOM, spoke about the results of the 49th Global Fund (GF) Board Meeting, in which...
June 5, 2023

ECOM presents the results of the first analysis of PrEP protocols in the EECA Region

LGBT Health Coordinator Nikolay Lunchenkov and Health Officer Uluk Batyrgaliev took part in an educational workshop on the provision of...
May 11, 2023

Report on the Violations of LGBT People's Rights in Kyrgyzstan in 2022

ECOM continues to regularly assess violations of LGBT people’s rights in the countries of the Eastern Europe and Central Asia...
May 8, 2023

Kyrgyzstan Legislation Analysis for 2022

We want to present the results of our analysis of the legislative framework of the Kyrgyz Republic for 2022. Every...
May 8, 2023

ECOM and the Estonian Institute for Health Development Updated the Estimated Number of MSM in Estonia

ECOM systematically analyzes the changes in the size of the LGBT community in the EECA region. Together with the Estonian...
April 25, 2023

Report on Violations of LGBT People's Rights in Kazakhstan in 2022

ECOM annually conducts an analysis of violations of LGBT people’s rights in the countries of Eastern Europe and Central Asia....
April 14, 2023

Analysis of Georgian Legislation for 2022

Every year ECOM conducts an analysis of national legislation related to SOGI and HIV in the countries of our region....
February 23, 2023

ECOM’s Position Paper on the Initiation of a Law on the Transparency of Foreign Influence in Georgia

Background On February 20, the party “Power of the People” initiated a law on agents of foreign influence in the...
February 10, 2023

Why Do Communities Need to Monitor Situation Concerning Their Lives? ECOM Shared Experience in Community-Led Monitoring in EECA

The ECOM team participated in the Regional Community Consultation on building consensus regarding approaches and priorities in community-led monitoring in...
February 7, 2023

ECOM Conducts Analysis of National Legislation of Uzbekistan Related to LGBT Rights and HIV

Uzbekistan, while internationally declaring its openness and accessibility to information, including on human rights, remains one of the most closed...
February 2, 2023

Do Armenian Laws Protect LGBT People's Rights?

We continue to talk about the legal framework in the countries of our region, which we evaluate every year to...
February 1, 2023

How Do Laws in Moldova Protect LGBT People?

Every year ECOM conducts an analysis of national legislation related to SOGI and HIV in the countries of our region....